The blanket of overcast dawn has been rumpled into the
corner of the northeast sky. A clear
blue-sky inaugurates April as Nature has joined in the conspiracy to Light It
Up Blue for awareness and acceptance of autism.
For nine years now, Mason has led us on this journey of discovery,
awakening, worry, therapy, and understanding.
When the sky is blue, blue is the color of serenity. When a blue light glows during an indigo
night, blue is peaceful. Blue is a new
beacon shining through awareness to illuminate acceptance.
The work of spreading awareness is never finished. There will always be people who only notice
when someone close faces the daily challenges dealt by autism. Others will choose to ignore the evidence and
believe the skillfully spun myths. Some
will be aware but in the blurred images they can see through a foggy, crackled
window pane. But huge numbers of people
are aware. When a new diagnosis is
rendered, there are places to go and people to see for help and support. New movies, television programs, news stories
and literature illuminate the stories of families and people touched by autism.
So what is acceptance?
A few months ago, Mason and I sat on the bar stools at our kitchen
island. First I spun one way, he spun
the other. Each revolution brought us to
where our eyes met. With each circle,
his grin grew and his eyes sparkled. I
reversed direction. So did he. He laughed.
So did I. I leaned in close as we
spun around – close enough that our foreheads bumped. Chuckles became belly laughs. He laughed so
hard he almost slipped off the stool. Our
laughter lasted; it always seems to last.
Mason received the Courage Award in a vote by his schoolmates. He climbed to the stage for the principal to
hand him his certificate. He got, and
gave, many high fives. Words are not his
forte. He did not give a speech or thank the crowd for their votes. He smiled.
When he does use words, an active listener will hear him say what’s on
his mind. As he descended the stairs
from the stage, Mason’s dad waited nearby.
Mason reached out to Joel, thumped him in the middle of his chest and
said, “Happy Birthday.” Yes, it was Joel’s
birthday, maybe his very best birthday.
Going to bed or to the bathroom are factors in a new calculus
for child rearing. Mason’s mom has
discerned new ways to see – she gets it. Mason will tease her. He might become impatient with her when she
misses his point. But he knows. He knows that if he is tolerant and patient,
she will understand. He brings her his
Mizzou t-shirt because it’s time to get ready for school. The bag chairs are set up in garage. He plops into one. Jennifer sits in the other. They communicate until school bus comes. He knows how happy she will be when he comes
home after school.
Winnie has figured out how to hide the cookies when Mason
comes to visit. His powers of deduction
would humble Sherlock. From the pot with
the upside down lid to the red Tupperware container, he systematically peeks or
shakes, then considers his next move. It only takes a quarter inch corner of an Oreo
bag to reveal the latest hiding place.
Once found, it gets permanently logged into his memory for future
quests. It’s a battle of wits between
him and Wee.
Thomas is his brother.
They are confidants and comrades.
Each knows what the other is thinking.
They wrestle with vigor and sometimes wind up laughing, or crying. The big brother leads the way. The younger brother does his best to
emulate. Sometimes they want to be
together. Sometimes they must have some
distance between them.
April 2nd is the day set aside for autism
awareness. April 2nd is also Mason’s youngest cousin’s
birthday. When the family gathers for
Joe’s birthday, Mason will be one of the gang.
He will join Joe as the cousins play ball in the back yard or swing on a
jungle gym. The most important things to
Mason on April 2nd is birthday cake and watching Joe blow out
candles. And ice cream! And time with his cousins and brother being
boys.
Mason is Mason. He is
not autism. Look at him. You will see joy and frustration. Love and defiance. Impatience and impishness. You will see a boy. You will see Mason.
--td
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